Five years ago Kaiden was told he would never walk or talk now he is going to school

Three hours after Kaiden Ryan was born, his parents learned the unthinkable.

Their newborn son was not long – he had a brain haemorrhage and only with urgent and dangerous surgery did he have a chance of surviving.

Julian and Brooke had a choice, go for a life-threatening procedure or let their only son escape.

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“We had to make a decision on the spot, we were like go, go and try to save him,” said the father of NSW Central Coast 7life.

WATCH THE VIDEO ABOVE: Kaiden Proves Doctors Wrong

Kaiden's two big sisters challenge him every day
Kaiden’s two big sisters challenge him every day Credit: Provided

With two daughters at home, the Ryans were thrilled to meet baby Kaiden.

After a normal pregnancy and delivery, Julian and Brooke were preparing to take him home.

But three hours later, something unexpected happened.

The staff started circling around Kaiden.

“His blood sugar was really high and then it was dropping really low. It was so extreme that they actually thought the machine was faulty,” the father reveals.

The truth was far more sinister.

Kaiden was bleeding inside.

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‘What were we going to do…not do it? We must at least try to save him” – Julian Ryan

Doctors had discovered a massive brain bleed and her parents had been told that urgent surgery was needed to relieve the pressure that had built up in her head.

However, the operation was not easy.

In fact, the doctors couldn’t promise them that Kaiden would come off the table.

“We were told that he [Kaiden] He didn’t have long left and we had to make a decision, but they told us he probably wouldn’t survive the operation,” says Julian.

Kaiden was born with a brain bleed
Kaiden was born with a brain bleed Credit: Provided

“What were we going to do…not do it?” We must at least try to save him.

As the nervous parents roamed the halls of Sydney Children’s Hospital Randwick, their newborn son underwent the invasive operation.

“The surgery took a few hours, but honestly it took weeks,” Julian recalls.

And when the surgeon came out to see them, he got news that brought them to their knees.

Kaiden was alive.

The surgeons had stopped the bleeding, leaving with him a scar extending from the base of his neck to the top of his head.

Over the next few months, Kaiden defied doctors’ predictions.

“They weren’t sure we’d be able to suck on a bottle, but he did!” Julian explains.

Finally given the go-ahead, Kaiden was discharged from the hospital and the family put the last few months behind them.

Since being diagnosed with cerebral palsy, Kaiden has continued to score goals
Since being diagnosed with cerebral palsy, Kaiden has continued to score goals Credit: Provided

But a few months later, the family began to notice that their boy was not achieving his goals.

“He had no neck strength, he was a very… sloppy baby. But we asked our pediatrician and they just said it was because of his scar from the surgery,” Julian reveals.

The parents waited and waited…but Kaiden still couldn’t hold his head high.

Julian started researching Kaiden’s symptoms online when he came across a cerebral palsy checklist.

“My heart just sank, Kaiden ticked all the boxes,” the father explains.

the family contacted the Cerebral Palsy Alliance (CPA) and Kaiden was diagnosed with the disease when he was one year old.

Julian and Brooke felt ‘lost’ as specialists prepared them for the worst – explaining their son may never walk, talk or even swallow again.

But Kaiden never stopped fighting.

Working hard in therapy, he was achieving a new personal best every day.

Four years after his diagnosis of cerebral palsy, Kaidan proudly went to school on his first day of kindergarten with his two older sisters.

Kaiden was the last piece of the family
Kaiden was the last piece of the family Credit: Provided

“He keeps proving everyone wrong, we were told he might be able to say a word or two, now he can string sentences together,” says Julian.

“He can walk short distances with a walker, stand while holding on to things and he’s only getting better. I don’t mind if he keeps proving me wrong.

Julian is taking part in the Extra Mile campaign to help raise funds so that CPA can continue to provide expert care to all Australians living with cerebral palsy.

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